Home Sweet Home

I have been home now for over a week, but I have not found the motivation to update my blog. Partially due to natural post surgical fatigue, and partially due to the slight brain haze of narcotic pain meds. That being said, my recovery is steadly moving along. Kyle makes sure that I get in at least one walk a day. Even as he prepares his new classroom for the first day of school, he sets out time to take me out for a walk each evening– our longest thus far is just over 1 mile. Not to shabby for less than 3 weeks post-op. That’s what you get from a recovering long distance runner married to a fellow runner and former coach. Kyle knows just how to push me to get the most out of me, without over doing it.  I still have some sorness and am not moving at top speed, but I am very happy with the overall pace of my recovery.

I wear this t-shirt with pride. It is because of Dr. Hurst and his surgical team at the University of Chicago Medical Center that I am rounding the home stretch to my j-pouch and am just one step away from ending my long battle with Ulcerative Colitis.

DSCN2313 _MG_1355

Both photos were taken on my release dates from surgery.

(On the left: Surgery #1- March 15, 2013. Released March 20, 2013. Right: Surgery #2– July 25, 2013. Released July 30, 2013)

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3 thoughts on “Home Sweet Home

  1. Hi Mary, Glad to hear that you’re doing so well. I actually got my j-pouch 13 years ago after being diagnosed with UC. Unfortunately I continued to have problems and discovered that I have Crohn’s Disease instead. I haven’t had a full nights sleep in over 5 years since I get up 2 or 3 times. I just recently had a scope which found CD in my pouch. I’m scheduled for surgery September 25 to have my rectum and j-pouch removed and I will have a permanent bag instead. I think Heather didn’t realize that I already had a j-pouch. So many people get confused and think a j-pouch is on the outside and not the inside. I’ve had residents at the emergency room ask where the pouch was. I just look at them and say, “Uh on the inside.”
    Noel Fane

    • Oh my goodness, I can’t believe you have encountered that kind of confussion while in the ER! I can relate to the sleepless nights, I went through that for the 7 years before my surgery. I am sorry to hear that the j-pouch did not work for you. My Doctors have told me that they cannot definitively rule out Crohn’s in my case and that I could encounter symptoms at sometime in my life. I wish you luck with your upcoming surgery. You should checkout Stephanie’s blog, stolencolon.com. She has Crohn’s and recently had surgery to make her ileostomy permanent.

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